Research and Data

Below are materials that PAR prepared and/or collaborated on with partners across the state and country. These materials are made public for anyone to use to bring more awareness and advocacy to issues facing the Intellectual Disability/Autism system. If you have any questions about these materials please email [email protected].

2025 Pennsylvania Direct Support Profesional & Frontline Supervisor Compensation Study Released April 7, 2026		2025 Community Participation Support  Hidden Waiting List Report Released April 30, 2025
2024 Pennsylvania Direct Support  Professional & Frontline Supervisor Compensation Study Released June 4, 2024		2022 Pennsylvania Direct Support  Professional & Frontline Supervisor  Compensation Study Released November 18, 2022
Needs Exception Allowance Rate  Change Survey Released October 27, 2022		Diversity Data Collection Survey  Data Brief Released March 2, 2022
Systemic Factors Impacting Black  People in the Workforce &  Recommendations for ID/A Providers  Discussion Paper Released March 2, 2022		Pennsylvania ODP-Administered HCBS  Proposed Rate Revisions Impact Analysis Released January 19, 2022
COVID-19 Pandemic Impact of the Pennsylvania ID/A Workforce Released August 24, 2021		System Capacity Erosion due to the Pandemic Released June 17, 2021
Fiscal Impact of the COVID-19 Pandemic on ID/A Providers Released June 17, 2021		2021 IDA Case and Mortality Rates  Study Summary Released June 17, 2021
Cash on Hand Study Data Brief Released April 30, 2020		PAR IDA Pandemic Findings White Paper Released October 29, 2020
PAR ID/A Pandemic Findings Infographic Released November 13, 2020		2019 Pennsylvania Direct Support Professional & Frontline Supervisor Compensation Study Released January 2020
COVID-19 Case & Mortality Report Released October 26, 2020		Impact of COVID-19 on IDA  Providers Data Brief Released September 23, 2020
Hospital Denial of Care One Pager Released January 29, 2021		Provider Relief Fund Survey Results Released November 20, 2020